Frontotemporal Dementia Can Everything
Understanding Frontotemporal Dementia: Helping to Empower People with Knowledge
Frontotemporal dementia (FTD) can make it feel like life is unraveling for people and families living with FTD.
Learn more about FTD and help empower yourself and those you care for. By learning more about FTD, you can better understand the condition, enabling more informed decisions about care and potentially enhancing your quality of life.
About FTD
What you need to know.
FTD is a rare neurodegenerative disease, but it is the most common form of dementia for people under 60.
FTD can change a person’s behavior and personality and limit their verbal and physical abilities.
FTD symptoms can begin at a younger age compared to Alzheimer's disease, another form of dementia.
Discover more about FTD
FTD & GENETICS
Follow the thread to answers.
While most cases of FTD occur without a known cause, some people will develop FTD based on their genetics, or genes inherited from their family. There are multiple inherited forms of FTD. This means they are caused by gene mutations, or changes in the DNA code.
The three most common gene mutations that may lead to FTD are GRN, C9orf72, and MAPT.
Currently 50,000-60,000 people affected
FTD currently affects 50,000 to 60,000 people in the U.S.
40% have an affected relative
About 40% of people living with FTD have a family history of a neurodegenerative disease
90% chance of developing FTD
People with the GRN gene mutation have a 90% chance of developing FTD by age 70.
What is genetic counseling?
Genetic counseling can help you make informed decisions and explain what answers genetic testing results could provide.
Genetic testing can be a valuable resource for you or your family.
A potential path forward.
Uncovering FTD gene mutations through genetic testing could lead to hope for research and future treatments.
RESOURCES
Support is
available now.
If you are living with or caring for an individual with FTD, support groups can provide access to resources and connect you with the FTD community.